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BACKGROUND Parkinson’s disease (PD) is an age-related neurodegenerative disorder with no known cure. There are an estimated 630,000 to almost 1 million people with Parkinson’s in the United States.1 The number of cases may double by 2040, as the population ages. Early symptoms include barely noticeable tremors, but as the disease develops, patients experience problems that may include thinking difficulties, depression and other emotional changes, swallowing problems, sleep disorders, bladder problems, stiffness, blood pressure changes that may induce dizziness or lightheadedness (and associated risk of falls and hip fractures), smell dysfunction, fatigue, pain, and sexual dysfunction.2 Patient care focuses on quality of life and reduction in disability.3 Patients with degenerative chronic diseases like Parkinson’s require specialty medical care, nursing, and various supportive services. Access to services can be difficult and available personnel do not necessarily have disease-specific expertise. In addition, the standard of care can vary, and care coordination presents challenges. To learn more about new publications when they become available, visit the Fund’s website and register to receive email alerts.

ParkinsonNet: An Innovative Dutch Approach to Patient-Centered Care for a Degenerative Disease