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Children with medical complexity are known to have increased safety concerns around discharge and their transition home. These patients have multiple diagnoses, medications, and equipment and have high-acuity conditions that require close and constant monitoring. The home environment for these children resembles a hospital critical care unit to manage their chronic and acute conditions. Families are responsible to provide high-level care, including clinical assessment and life-saving interventions, to their children around the clock, similar to the care they would receive by expert clinicians on a high-acuity unit or ICU. The Creating and Applying Individualized Transition Plans: Learning Your New Normal (CAITLYNN) Program uses family experiences to address the increased care requirements and safety concerns associated with the transition from the hospital to the home setting.

Partnering With Families of Medically Complex Children Transitioning From the Hospital to Home