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Background: Family caregivers providing care to a terminally ill person are affected by the challenge of providing care at the endof-life stage. A palliative approach can differently mark the end-oflife experience for the caregiver, according to the kind of given and received social support. We searched to increase our understanding of what could influence the perceived experience of care by caregivers. Methods: This study focused on the experience of family caregivers, using a qualitative method, in regard to their perceptions of given and received social support from formal and informal sources while caring for a terminally ill person in different settings and trajectories of care, in home care or a specialized unit. Participants were 23 caregivers who cared for end-of-life patients at home and/ or in a specialized palliative care unit. Semi-structured face-to-face interviews were performed 3 to 6 months later and the data gathered were then qualitatively analyzed using an inductive grounded theory approach. Results: The results show that caring for a terminally ill person requires continuous balancing between given and received support to ease the caregiver’s experience. Analysis has identified the aspects affecting the balance between given and received social support and the ability of the caregiver to keep a positive perception of the lived experience. Conclusion: Finding revealed that family caregivers seem to cope better if they perceived sufficient social support during the caring period. These findings might be useful in the continuous improvement of training for different settings in palliative care and to focus on identifing the needs of caregivers.

Family Caregivers Perceptions of Palliative Care in Home and Unit: The Balance between Given and Received Support