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Sickle cell disease (SCD), an inherited chronic medical condition, affects about 100,000 individuals in the United States, a population that is predominantly African American.1 These individuals experience multiple serious and life-threatening complications, most frequently recurrent vaso-occlusive pain episodes,2 and they require interactions with multidisciplinary specialists from childhood. Because of advances in treatments, the majority are reaching adulthood; however, there is a dearth of adult health care providers with the training and expertise to manage their complex medical needs.3 Other concrete barriers to adequate SCD care include insurance and distance to comprehensive SCD centers.4,5 Social, behavioral, and emotional factors may also contribute to challenges with SCD management. SCD may limit daily functional abilities and lead to diminished overall quality of life.6,7 Some adolescents and adults may require high doses of opioids, which contributes to health care

Health Care Disparities Among Adolescents and Adults With Sickle Cell Disease: A Community-Based Needs Assessment to Inform Intervention Strategies