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Informal care is taking an increasingly important role in our health care system, and an improvement in our understanding of caregiving experiences and outcomes has become more relevant. The Lifelines informal care add-on study (Lifelines ICAS) was initiated within the Lifelines Cohort Study to cover the large heterogeneity in the caregiver population and to investigate the complex interplay among the characteristics of the caregiver, care recipient, and care situation and positive and negative caregiver outcomes. In this paper, we discuss the study design and data collection procedures of Lifelines ICAS, provide a detailed overview of its measures, and describe the caregiver study population.

The Lifelines Cohort Study: a data source available for studying informal caregivers’ experiences and the outcomes of informal caregiving