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Background  Personal factors ( PFs ) are internal factors that determine functioning and the individuals’ experience of disability. Their coverage by patient-reported outcome measures (PROMs) has not been examined in rheumatoid arthritis (RA) so far. The aims of this study were to identify  PFs  important in the life stories of people with RA and to determine their coverage by PROMs used in RA.    Methods  The qualitative data of people with RA was explored to identify  PFs . Additionally a systematic literature search was conducted to find PROMs used in RA. PROMs items were linked to the components, domains and categories of the International Classification of Functioning, Disability and Health (ICF) to determine the coverage of important  PFs  by PROMs.    Results  Twelve  PFs  were found to be important in the life stories of people with RA. The  PFs coping  and  reflecting about one’s life in an optimistic way  were covered most frequently, each by 14 of the 42 explored PROMs, while  job satisfaction  was not covered at all. The  London Coping with Rheumatoid Arthritis Questionnaire, General Self-Efficacy Scale, Arthritis Self-Efficacy Scale ,  Rheumatoid Arthritis Self-Efficacy Questionnaire  and  Revised Ways of Coping Inventory  covered most  PFs . Nineteen PROMs did not cover any of the  PFs .    Conclusion  Several  PFs  were identified as important in the life stories of people with RA, but only 55% of the PROMS covered some of these  PFs . When evaluating  PFs  important to people with RA, health professionals should be alert on which PROMs can be used to assess which  PFs .

health and quality of life outcomes

Do patient-reported outcome measures cover personal factors important to people with rheumatoid arthritis? A mixed methods design using the International Classification of Functioning, Disability and Health as frame of reference