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Background  The aim of this study was to assess the relation between perceived social support and personal autonomy of individuals with intellectual disabilities and Health-Related Quality of Life.    Methods  A cross-sectional study with a multicentre sample was carried out including 162 institutionalized individuals with intellectual disability. The measurement tool was a structured questionnaire with  sociodemographic variables , and three scales:  Functional Independence Measure (FIM)  scale ,  Duke-UNC Functional Social Support Questionnaire , and  SF-36 Health Survey , which were completed during an individual/family interview.    Results  The perception of  received social support  is high on all 11 items of the Duke-UNC questionnaire, with an average of 3.45 for item-1 and 4.85 for item-11, which represents a  total perceived support  of an average 47.98 points (±SD7.30) (normal support). The Mental-Health component is rated worse than Physical-Health (67.41 vs. 71.74). The average rates for the different dimensions range from 57.34 points for Social-Functioning (the lowest rating) to 79.61 points for Bodily-Pain (highest rating). A multiple linear regression analysis reveals that the dimensions of Physical-Functioning ( p  < 0.001), Role-Physical ( p  = 0.016) and Bodily-Pain ( p  = 0.022), which are elements of the Physical-Health component, are independent predictive variables with the Degree of Autonomy (FIM) as a dependent variable. Social-Support ( Duke-UNC ) as a dependent variable is determined by the dimensions of Vitality ( p  = 0.014), Role-Emotional ( p  = 0.001) and Mental-Health ( p  < 0.001), which are part of the Mental-Health component and act as independent predictive variables.    Conclusions  Individuals with intellectual disability and a higher degree of  personal autonomy  determined by institutional and family support report better Health and Quality of Life.    Electronic supplementary material  The online version of this article (10.1186/s12913-018-3856-5) contains supplementary material, which is available to authorized users.

bmc health services research

Do health and social support and personal autonomy have an influence on the health-related quality of life of individuals with intellectual disability?