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Background  In dementia care, it is crucial that the chain of care is adapted to the needs of people with dementia and their informal caregivers throughout the course of the disease. Assessing the existing dementia care system with regard to facilities, availability and utilization may provide useful information for ensuring that the professional dementia care and service system meets the needs of patients and their families from disease onset to end of life.    Methods  The aim of this study was to further develop and test a mapping system, and adapt it to a local context. In addition, the aim was to assess availability and utilization of care activities as well as professional providers’ educational level in nine municipalities under the categories of  Screening, the diagnostic procedures, and treatment ;  Outpatient care facilities ;  Institutional care  and  Palliative care . This cross-sectional study was conducted in April through May 2015. Data was derived from the health care and social service systems in nine rural and urban municipalities in two counties in Sweden. The mapping system covered seven categories with altogether 56 types of health care and social service activities.    Results  The mapping system was found to be reliable with minor adaptations to the context mainly in terms of activities. Availability of care activities was common with low utilization regarding  Screening, the diagnostic procedures, and treatment; Outpatient care facilities ;  Institutional care  and  Palliative care  and dementia trained staff was rare. Availability and utilization of care activities and professionals’ educational level was higher concerning  screening, the diagnostic procedures and treatment  compared with  outpatient care facilities ,  institutional care  and  palliative care .    Conclusions  The mapping system enables policy makers and professionals to assess and develop health care and social service systems, to be offered proactively and on equal terms to people with dementia and their informal caregivers throughout the course of the disease. The educational level of professionals providing care and services may reveal where, in the chain of care, dementia-specific education for professionals, needs to be developed.

Dementia care and service systems – a mapping system tested in nine Swedish municipalities