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Functioning is recognized as an important study outcome in chronic widespread pain (CWP). The  Comprehensive ICF Core Set for CWP  is an application of the International Classification of Functioning, Disability and Health (ICF) with the purpose of representing the typical spectrum of functioning of patients with CWP. The objective of the study was to add evidence to the validation of the  Comprehensive ICF Core Set for CWP  from the patient perspective. The specific aims were to explore the aspects of functioning and health important to patients with fibromyalgia, and to examine to what extent these aspects are represented by the current version of the  Comprehensive ICF Core Set for CWP .    Methods  The sampling of patients followed the maximum variation strategy. Sample size was determined by saturation. The focus groups were digitally recorded and transcribed verbatim. The meaning condensation procedure was used for qualitative data analysis. After qualitative data analysis, the identified concepts were linked to ICF categories.    Results  Thirty-three patients participated in six focus groups. Fifty-four ICF categories out of 67 categories of the  Comprehensive ICF Core Set for CWP  were reported by the patients. Forty-eight additional categories that are not covered in the  Comprehensive ICF Core Set for CWP  were raised.    Conclusions  Most ICF categories of the existing version of the  Comprehensive ICF Core Set for CWP  could be confirmed from the patient perspective. However, several categories not included in the Core Set emerged and should be considered for inclusion.

arthritis research and therapy

Validation of the International Classification of Functioning, Disability and Health (ICF) Core Set for chronic widespread pain from the perspective of fibromyalgia patients