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Results The response rate was 47%. The most common questions asked by service users related to aetiology (22.5%) prognosis (42.6%) general treatment (16.8%) surgery (12.4%) and parental guilt (5.6%). 78.6% of consultants said that patients were provided with written information provided by a member of staff and written by the Scoliosis Association UK in 61.5% of cases. 92% of consultants referred patients to relevant web sites. Surgeons stressed the importance for information to be evidence-based, address patients anxieties and counselling needs, provide clear natural history information and address ways of contacting other patients with AIS who have or have not undergone surgery.

scoliosis

Information provided to patients with adolescent idiopathic scoliosis (AIS) at the first point of diagnosis in the hospital clinic: a survey of UK NHS scoliosis consultants