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Background A 2014 survey of people with Parkinson’s (PwPs) and clinicians internationally identified the following perceived barriers to clinical trial success in Parkinson’s disease (PD): fear of potential adverse consequences; communication failures and misunderstandings over the trial process (PwPs); and insufficient financial/administrative support (clinicians)[1]. In order to address these misperceptions, we have developed a clinical trials charter for use by those considering participating in, or conducting, Parkinson’s clinical research. The ultimate aim of the charter is to improve recruitment to and retention in clinical trials in PD.

People with Parkinson's design clinical trials charter to improve communication about, recruitment to and retention in Parkinson's clinical trials