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Background Measuring and responding to patient experience in clinical services is a policy priority, but this focus has not extended to the research setting. At the same time, with only 45% of trials recruiting to target, increasing recruitment and retention is a priority. It is hypothesised that using patient experience of trials data to improve the design of trials may have an impact on these outcomes. The study explored current measurement of patient experience of trials and stakeholder views around the feasibility of collecting and using this type of data.

Measuring patients’ experience of clinical trials: results of an exploratory review and stakeholder workshop