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Background This study looked at the effects of ageing on the health of 42 adults with spina bifida (SB) and/or hydrocephalus (H) over the age of 35 years, living in the West Midlands Region of the United Kingdom, and known to the authors, who are employed as Advisers with ASBAH. Of the 14 males and 28 females who took part, 9 had SB, 27 SB&H, 4 H and 2 spina bifida occulta. The focus of the project was identified in preliminary exploration with a group of service users and emphasis given to general health, mobility, continence and hydrocephalus.

Journey into the unknown: a survey into the effects of ageing on the health of people with spina bifida and/or hydrocephalus in the West Midlands area