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Background One challenge to understanding the natural history of spina bifida is there are very few sources of data on larger populations of adults with spina bifida. The use of administrative datasets may help to fill this gap. Though there are limitations to the use of administrative data, they can provide information on many individuals with spina bifida, potentially illuminating patterns of diagnoses, treatments and associated payments.

cerebrospinal fluid research

Description of an adult spina bifida administrative sample: findings from the United States Veterans Administration Spina Bifida Health Care Program database