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Objective. To evaluate the reliability of a manikin format, patient-reported joint count in juvenile\udidiopathic arthritis (JIA), and to detect changes in agreement at a second visit.\udMethods. Patients with JIA aged 12–21 were asked to mark joints with active arthritis on a manikin\udbefore their regular clinic visit. The physician then performed a joint count without having seen the\udpatient’s assessment. Agreement between scores of physician-reported and patient-reported joint\udcounts was assessed using ICC. Kappa statistics were used to assess reliability of scoring individual\udjoints.\udResults. The study included 75 patients with JIA. In general, patients had a low number of active\udjoints (median 1 joint, indicated by the physician). ICC was moderate (0.61) and k ranged from\ud0.3–0.7. At the second visit, k were similar; the ICC was 0.19. When a patient scored 0 joints, the\udphysician confirmed this 93%–100% of the time. When the patient marked ≥ 1 joints, the physician\udconfirmed arthritis 59%–76% of the time. Sensitivity to change was moderate.\udConclusion. Agreement between physician and patient on the number of joints with active arthritis\udwas reasonable. Untrained patients tended to overestimate the presence of arthritis when they\udmarked active joints on a manikin-format joint count. When the patient indicated absence of\udarthritis, the physician usually confirmed this. As the agreement did not improve at followup, future\udresearch should focus on the possibility of achieving this through training. For now, the\udpatient-reported joint count cannot replace the physicians’ joint count in clinical practice; it may be\udused in epidemiological studies with cautio

Patient-reported joint count in juvenile idiopathic arthritis: the reliability of a mannequin format