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There have been important and necessary developments and changes in relation to the care and support of people with intellectual disabilities in many countries across the world from institutional to community-based models of care (Shakespeare, 2013). These changes are welcome and important by way of seeking to provide socially inclusive, rights-based approaches that aim to empower and enable this often marginalised population (WingesYanez, 2014; World Health Organization, 2015). There is now an increasing focus on relationships and sexuality concerns from the perspective of people with intellectual disabilities that takes account of their individual needs and aspirations (Arias et al., 2009). Sitting alongside their perspectives are the interests and concerns of parents, families and carers (Friedman et al., 2014). From the research perspective of studies involving the voices of adults with intellectual disabilities, there is the clear articulation of the desire to form and maintain friendships, and in some cases romantic and intimate relationships (Bernet, 2011; Turner and Crane, 2016). The existing research literature highlights the tensions that may be evident between the right to autonomy and decision-making by adults with intellectual disabilities and the need of parents, families and carers to exercise control over the relationships and expression of sexuality (Rushbrooke et al., 2014; Yau et al., 2009). These concerns can be legitimate due to issues related to exploitation and harm, with policy responses aiming to protect those who may be particularly vulnerable (Bane et al., 2012; Schaafsma et al., 2015).

journal of research in nursing

Review: Mediated pathways, negotiated identities: a critical phenomenological analysis of the experience of sexuality in the context of intellectual disability