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METHODS ANCA-associated vasculitis (AAV) is a severe inflammatory condition with major impacts on patient reported outcomes and experience. This e xperience will be vary between patients and over time as the disease remits and rela pses. Treatment choices and the impact, both positive and negative of specific drugs will be relevant. It is important to understand patient unmet needs and apprec iate their perspective on clinical trials, new developments and guideline recommend ations. There is little published evidence regarding patient repor ted experience in AAV – social media is an important platform to consider and examine since patients discuss their concerns spontaneously. This study aimed to examine the scope and content of social me dia conversations about AAV in Europe in order to better understand challenges , unmet needs and patient experience.

345. WHAT IS THE ANCA-ASSOCIATED VASCULITIS COMMUNITY DISCUSSING ONLINE? A SOCIAL MEDIA ANALYSIS FROM 5 EUROPEAN COUNTRIES