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Background Data collection methods, metadata-reporting standards and usage of data for health monitoring (HM) and health system performance assessment (HSPA) are not uniform in Europe. Moreover, the evidence produced by research are not always available, comparable or usable for research purposes and policy making. The aim is to summarize health data collection methods, quality assessment, availability and accessibility procedures covering different data sources for HM and HSPA across EU countries. Methods The study is conducted through a multidimensional approach, which includes: i) a review of institutional websites (OECD, Eurostat, WHO-Europe); ii) a review of EU research networks; and iii) a multi-national survey addressing epidemiologists, health data managers and researchers that have played leading roles in EU projects. Currently, the survey instrument is being piloted. A qualitative data analysis to describe and compare the identified data sources for HM and HSPA will be performed. Results As part of the work within the Joint Action ‘Information for Action’ (InfAct), the study will generate knowledge on standardized health data collections and related metadata, used methods and procedures for HM and HSPA in EU. It will also facilitate the identification of national or sub-national health data collected through standardized procedures but not included in international databases or research networks. Conclusions The lack of infrastructures for health data sharing in EU limits data usage and comparability within and between countries. This study, as part of InfAct, will facilitate the assessment of health inequalities across EU countries in terms of quality, availability, accessibility and comparability of health data and information. It will also facilitate sharing and dissemination of standardized and comparable health data collections, which are essential for research and evidence-based policy-making.

Generating knowledge on data collection methods and the availability of health information in Europe