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This exploratory study investigated the impact of the COVID-19 pandemic on the social isolation and potential cybersecurity risks of Alzheimer’s and other dementia caregivers. Through interviews and focus groups with caregivers, we examined the isolation and risks of Alzheimer’s caregivers relative to their caregiving responsibilities during the pandemic in Virginia. The results illustrated the general isolation, frustration and vulnerability of dementia caregivers – frustration with and vulnerability to the virus, lack of resources and supports, and to cybercrime. Most caregivers expressed frustration with losing supports and services during the pandemic, not knowing what services were available or how to access them, and wanting virtual supports on their terms (e.g. where and when they needed them, how often, etc.). Virtual supports that did not meet their needs also increased their vulnerability to stress and isolation. While many caregivers understood their risks for cybercrime, they perceived themselves as lacking some technological knowledge needed to remain safe thus adding to stress and caregiving burden. The results show the need for training/education and general information about how to protect those who may be caring for others from cybercrime. Screening tools to identify those at risk for cybercrime would also be useful.

A qualitative exploration of dual vulnerability: cybersecurity and social isolation risks for Alzheimer’s caregivers during the COVID-19 pandemic