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This paper argues that self-authored depictions of illness, disability, trauma and bodily hurt by marginalised individuals have deep agentic potential, particularly when these experiences are retold within empathetic online spaces on their own terms and in their own words. This is seldom possible in mainstream institutional settings which are structured by hegemonic norms and where the marginalised are often spoken for. Through an analysis of selected writings in Skin Stories, an Indian collective feminist media publication that publishes gendered articulations of disability, illness and healing, this paper explores the potential of marginalised writings in reclaiming control over one’s bodily narrative, sharing knowledge and forging spaces of empathy and connection. It analyses ways in which authors through “intimate vulnerable retellings” of everyday as well as traumatic bodily events/processes like ongoing illness, lifelong chronic pain and sudden disability reclaim and own narratives of bodily vulnerability. These retellings are analysed as interconnected, shared experiences that bear deep knowledge and challenge medicalised understandings. By acknowledging “bodies as knowledge” rather than “bodies as data” these retellings could potentially supplement and enrich medical approaches in managing and understanding chronic pain and illness specifically in India, thereby piecing together experience, knowledge(s) and expertise.

Reclaiming illness, pain and vulnerability through online writings: an analysis of Skin Stories