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Parents with intellectual disabilities face a disproportionately high risk of having their children removed from their care. Independent advocates can play an important role in supporting parents with intellectual disabilities through child protection proceedings. This study explored the lived experiences of both parents with intellectual disabilities and the advocates who supported them in the context of child protection proceedings. Four superordinate themes emerged from the data ( power and control; justice and fairness; compassion and empathy ; and  resilience ), underpinned by fourteen themes and three subthemes. The findings revealed positive and effective relationships between advocates and parents with intellectual disabilities and offered insights into this relationship. They also provided new information about the lived experiences of advocates themselves and the challenges they face. Points of interestMany parents with intellectual disabilities have their children taken away.Independent advocates help parents to understand why this happens and to have their voices heard.The independent advocate’s job is complex, requiring many different skills. They receive no funding from the state.Both parents with intellectual disabilities and advocates suffer feelings of powerlessness, due to isolation, lack of support and the challenges of going through child protection proceedings.Advocates can help to improve the experiences of parents with intellectual disabilities who go through the child protection process. Many parents with intellectual disabilities have their children taken away. Independent advocates help parents to understand why this happens and to have their voices heard. The independent advocate’s job is complex, requiring many different skills. They receive no funding from the state. Both parents with intellectual disabilities and advocates suffer feelings of powerlessness, due to isolation, lack of support and the challenges of going through child protection proceedings. Advocates can help to improve the experiences of parents with intellectual disabilities who go through the child protection process.

disability and society

Exploring the experiences of independent advocates and parents with intellectual disabilities, following their involvement in child protection proceedings