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In recent years those working in German SCI centres have realised that a growing number of young adults with myelodysplasia are seeking special treatment because of the lack of comprehensive and lifelong care. Statistical investigations, collected over a period of nine years, demonstrate that only severe complications in soft tissues, urology and equipment have led to an admission. The capacity of the centres is limited, and more facilities are necessary. There is a political demand.

The lack of comprehensive care causing complications in patients with myelodysplasia