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Relatively few attempts to measure the effects on the health-related quality of life (HRQoL) of informal caregivers within the context of economic evaluations have been reported. This paper is an exploratory attempt to find suitable methods to assess caregivers' HRQoL, using a population of parents of children with major congenital anomalies.

Assessing health-related quality-of-life changes in informal caregivers: an evaluation in parents of children with major congenital anomalies