Open AccessQualitative Parental Perceptions of a Paediatric Multidisciplinary Team Clinic for Prader-Willi Syndrome
Author(s) -
Jennifer Cox,
Claire Semple,
Rhian Augustus,
Melanie Wenn,
Shelley Easter,
Rebecca Broadbent,
Dinesh Giri,
Elanor C. Hinton
Publication year - 2021
Publication title -
jcrpe
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.566
H-Index - 35
eISSN - 1308-5735
pISSN - 1308-5727
DOI - 10.4274/jcrpe.galenos.2021.2021.0010
Subject(s) - medicine , respite care , thematic analysis , outpatient clinic , multidisciplinary team , qualitative research , perspective (graphical) , nursing , perception , family medicine , psychology , sociology , social science , artificial intelligence , neuroscience , computer science
This preliminary review was conducted to inform the design of a new service to support families with children with Prader-Willi syndrome (PWS). Families were invited to attend a pilot clinic at a hospital outpatient department, comprising appointments with a multi-disciplinary team (MDT).