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计划接受造血干细胞移植的患儿家长的顾虑与经历
Author(s) -
Liu YingMei,
Wen YuChuan,
Weng PeiYin,
Jaing TangHer,
Chen ShihHsiang
Publication year - 2020
Publication title -
journal of advanced nursing
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.948
H-Index - 155
eISSN - 1365-2648
pISSN - 0309-2402
DOI - 10.1111/jan.14386
Subject(s) - transplantation , haematopoiesis , medicine , intervention (counseling) , stem cell , psychological intervention , content analysis , qualitative research , psychology , family medicine , nursing , surgery , sociology , social science , genetics , biology
Abstract Aims To explore the concerns and experiences of parents of children scheduled to receive allogeneic haematopoietic stem cell transplantation. Design A qualitative secondary analysis of interview data from an intervention study. Methods A total of 28 parents (4 fathers and 24 mothers) were recruited from a children's hospital, which performs approximately one‐third of all paediatric haematopoietic stem cell transplantation cases in Taiwan. Data were collected between September 2015–August 2018 by one researcher with face‐to‐face interviews, which were tape‐recorded and transcribed verbatim. The data were analysed using inductive content analysis to extract the main themes. Results Five themes describing parental concerns prior to paediatric haematopoietic stem cell transplantation were identified: the child became their first priority, seeking solutions, an interweaving of hope and uncertainty, grateful for the chance of a cure and the long road to recovery. Conclusion Understanding the concerns and experiences of our participants as they navigated the pre‐transplantation period could reduce parents’ uncertainty and improve the care of their child. Impact These experiences provide information that could be used by healthcare professionals to develop support interventions and strategies tailored to the individual needs of each parent, which could prepare parents for their child's haematopoietic stem cell transplantation.