Premium
A NEW INTERNET RESOURCE FOR CHRONIC KIDNEY DISEASE PATIENTS
Author(s) -
Ormandy P.,
Vlaminck H.,
Harrington M.,
Forest M.,
Visser R.
Publication year - 2006
Publication title -
edtna‐erca journal
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.381
H-Index - 27
eISSN - 1755-6686
pISSN - 1019-083X
DOI - 10.1111/j.1755-6686.2006.tb00449.x
Subject(s) - kidney disease , the internet , medicine , information resource , resource (disambiguation) , world wide web , business , computer science , knowledge management , computer network
This paper focuses on the development of a portal in the World Wide Web (WWW), which captures and locates quality information for patients with chronic kidney disease (CKD). It examines the problems patients face when accessing and understanding information gleaned from Web sites and describes an idea from a Research Board Member to facilitate patient access to quality information. The idea germinated into the development of a patient specific Web site, providing one stop access and links to appropriate CKD information, assessed by patients and health professionals. Collaboration between the EDTNA/ERCA Research Board and CEAPIR the European Federation of Kidney Patients has enhanced the project.