Open AccessP1722: CHANGES IN ACUTE HEPATIC PORPHYRIA HEALTH IMPACTS SINCE INITIAL DIAGNOSIS: RESULTS FROM THE PORPHYRIA WORLDWIDE PATIENT EXPERIENCE RESEARCH (POWER) STUDY
Author(s) -
Nance D.,
Lyon D.,
Hegarty S.,
Falchetto R.,
BarmanAksözen J.,
Mnif T.,
Meninger S.,
Lombardelli S.,
Dickey A.
Publication year - 2022
Publication title -
hemasphere
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.677
H-Index - 11
ISSN - 2572-9241
DOI - 10.1097/01.hs9.0000849744.46955.db
Subject(s) - medicine , disease , quality of life (healthcare) , anxiety , referral , population , depression (economics) , porphyria , pediatrics , family medicine , psychiatry , environmental health , nursing , economics , macroeconomics