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INVOLVING PEOPLE WITH DEMENTIA IN PARTICIPATORY DESIGN: ETHICAL PROCESSES AND CONSENT FOR DEMENTIA RESEARCH
Author(s) -
Allen Ruby S.,
Cook Sharon E.,
Hignett Sue M.,
Jais Charlotte L.
Publication year - 2017
Publication title -
alzheimer's and dementia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 6.713
H-Index - 118
eISSN - 1552-5279
pISSN - 1552-5260
DOI - 10.1016/j.jalz.2017.06.2594
Subject(s) - dementia , informed consent , citizen journalism , participatory design , empowerment , psychology , participatory action research , research ethics , nursing , medical education , engineering ethics , medicine , computer science , engineering , sociology , alternative medicine , political science , world wide web , psychiatry , anthropology , mechanical engineering , parallels , disease , pathology , law
Age, Mean Years (SD) 72.1 (4.7) 62.6 (3.8) 65.6 (4.4) <0.001 Gender (Male %) 50.9 55.2 60.0 0.9 Education, Mean Years (SD) 16.8 (2.5) 16.7 (2.5) 17.8 (2.3) 0.6 % APOE ε4, 0/1/2 allele(s) 77.8/20.8/1.4 69.0/24.1/6.9 60.0/20.0/20.0 0.038 Age of Symptom Onset, Mean Years (SD) N/A 57.4 (5.4) 60.0 (4.5) 0.3 Disease Duration, Mean Years (SD) N/A 5.2 (3.7) 5.6 (2.9) 0.8 Baseline CDR Score, Mean (SD) 0.03 (0.12) 1.40 (1.00) 3.40 (1.60) <0.001 Baseline MMSE Score, Mean (SD) 29.0 (1.2) 28.5 (1.4) 22.6 (2.7) <0.001 SUVR, Mean 1.02 (0.06) 1.02 (0.05) 1.08 (0.06) 0.1 % of N with MRI/FDG/Amyloid Scans 95.3/99.5/100.0 93.1/93.1/100.0 100.0/60.0/100.0