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P1‐225: TANDEM: Communication Trainings for caregivers of dementia patients
Author(s) -
Krause Katharina,
Haberstroh Julia,
Neumeyer Katharina,
Franzmann Judith,
Schmitz Bernhard,
Pantel Johannes
Publication year - 2009
Publication title -
alzheimer's and dementia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 6.713
H-Index - 118
eISSN - 1552-5279
pISSN - 1552-5260
DOI - 10.1016/j.jalz.2009.04.232
Subject(s) - dementia , psychological intervention , intervention (counseling) , family caregivers , psychology , competence (human resources) , medicine , cognition , disease , nursing , psychiatry , social psychology , pathology
questionnaires for professionals (physicians and health care staff) and care giving family members. x In a second step the internet platform is programmed on the basis of this analysis and the existing evidence-based guidelines for dementia. Central features for health care professionals are the evidence-based guidelines for the diagnostics, treatment and care of dementia. For patients and their carers a supportive decision aid system is provided. x Programming and pilot study of the system. x Implementation of the system and evaluation of its efficacy, utilization and user satisfaction. Results: The first project phase with the analysis of information needs is completed. 80 physicians, 165 cares and 105 care giving family members participated in the analysis. Most of the participants have internet access (physicians 95%, carers 90.6%, care giving family members 71.6%). The internet is used for information retrieval on dementia frequently by care giving family members 68.9% and carers 55.9%. Physicians (32.9%) use it less frequently for this purpose. Some needs were rated as important in all groups such as information on symptoms, course of the disease, pharmacological treatment, coping with challenging behaviour and stress relieve for carers. Examples for group specific information needs are communication with patients and financial support possibilities. Conclusions: The internet is an important source for information on dementia for care giving family members and health care staff. Physicians use the internet less frequently for this purpose as some of them judge the content of websites on dementia as scientifically inadequate. There are information needs that are similar for all target groups as well as group specific information needs. For the web site development the group specific needs have to be considered.