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A psychosocial clinical care pathway for pediatric hematopoietic stem cell transplantation
Author(s) -
Kazak Anne E.,
Swain Avi Madan,
Canter Kimberly,
Vega Gabriela,
Joffe Naomi,
Deatrick Janet A.,
Kolb E. Anders,
Chewning Joseph,
Pai Ahna L.H.
Publication year - 2019
Publication title -
pediatric blood and cancer
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.116
H-Index - 105
eISSN - 1545-5017
pISSN - 1545-5009
DOI - 10.1002/pbc.27889
Subject(s) - psychosocial , medicine , multidisciplinary approach , hematopoietic cell , triage , transplantation , focus group , family medicine , psychiatry , stem cell , haematopoiesis , social science , marketing , sociology , biology , business , genetics
Abstract Objective Currently, no evidence‐based psychosocial clinical care pathways (PCCP) exist to triage psychosocial risk levels and guide delivery of psychosocial care to youth receiving a hematopoietic stem cell transplantation (HCT) and their families. The purpose of this paper is to describe the use of qualitative research methodologies to develop PCCP in pediatric HCT consistent with the Standards for Psychosocial Care developed for children with cancer. Methods We previously used qualitative methodologies to interview parents to identify four principles to inform the development of PCCPs. Then in this study a focus group with parents and multidisciplinary clinicians was conducted to assess the acceptability of the PCCP, suggest modifications, and provide input on its use. Results The PCCP is six‐step pathway, starting with a standardized screening assessment with the Psychosocial Assessment Tool (PAT‐HCT) that identifies the family's specific care needs. The focus group data support overall assessment with the PAT‐HCT and the care principles underlying this approach. Conclusions This PCCP is a systemic multidisciplinary model for providing psychosocial care that is ready for the next stage of development and evaluation in clinical care.