Identifying patient‐ and family‐centered outcomes relevant to inpatient versus at‐home management of neutropenia in children with acute myeloid leukemia | Zendy

Szymczak Julia E. | Zendy; Getz Kelly D. | Zendy; Madding Rachel | Zendy; Fisher Brian | Zendy; Raetz Elizabeth | Zendy; Hijiya Nobuko | Zendy; Gramatges Maria M. | Zendy; Henry Meret | Zendy; Mian Amir | Zendy; Arnold Staci D. | Zendy; Aftandilian Catherine | Zendy; Collier Anderson B. | Zendy; Aplenc Richard | Zendy

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Identifying patient‐ and family‐centered outcomes relevant to inpatient versus at‐home management of neutropenia in children with acute myeloid leukemia

Author(s) -

Szymczak Julia E.,

Getz Kelly D.,

Madding Rachel,

Fisher Brian,

Raetz Elizabeth,

Hijiya Nobuko,

Gramatges Maria M.,

Henry Meret,

Mian Amir,

Arnold Staci D.,

Aftandilian Catherine,

Collier Anderson B.,

Aplenc Richard

Publication year - 2018

Publication title -

pediatric blood and cancer

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 1.116

H-Index - 105

eISSN - 1545-5017

pISSN - 1545-5009

DOI - 10.1002/pbc.26927

Subject(s) - medicine , neutropenia , myeloid leukemia , anxiety , febrile neutropenia , intensive care medicine , prospective cohort study , family medicine , pediatrics , psychiatry , chemotherapy

Efficacy of therapeutic strategies relative to patient‐ and family‐centered outcomes in pediatric oncology must be assessed. We sought to identify outcomes important to children with acute myeloid leukemia and their families related to inpatient versus at‐home management of neutropenia. We conducted qualitative interviews with 32 children ≥8 years old and 54 parents. Analysis revealed the impact of neutropenia management strategy on siblings, parent anxiety, and child sleep quality as being outcomes of concern across respondents. These themes were used to inform the design of a questionnaire that is currently being used in a prospective, multiinstitutional comparative effectiveness trial.

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